Citations 2
Usability and feasibility of PreventS-MD web app for stroke prevention
Feigin, Valery L. , Krishnamurthi, Rita , Medvedev, Oleg N. , Merkin, Alexander, Nair, Balakrishnan, Jalili-Moghaddam, Shabnam, Barker‐Collo, Suzanne , Ratnasabapathy, Yogini , Skinner, Luke C , Sachdev, Perminder S. , Brainin, Michael , Hankey, Graeme J. , Azarpazhooh, Reza, Bhatia, Anjali , Budinčević, Hrvoje , Child, Nicholas, Chwojnicki, Kamil , Correia, Manuel, Davis, Alan , Devlin, Gerry , Demarin, Vida , Dhamija, Rajinder K. , Ding, Ding , Докова, Клара , Dudley, Makarena , Dyer, Jesse, Edmonds, Misty , Ely, Marcela , Feigin, Svetlana , Fornolles, C, Gall, Seana , Gil, Artyom , George, Ann, Haršány, Michal , Harwood, Matire, Hou, Zeng‐Guang , Ibrahim, Norlinah Mohamed, Ka‘ai, Tania , Kalra, Nidhi , Katzenellenbogen, Judith , Kang, Law Zhe, Kar, Arindam , Kazin, Vitalij, Kamenova, Saltanat , Kondybaeva, A., Lavados, Pablo M, Lee, Tsong‐Hai , Liu, Liping , Mahawish, Karim , Maluchnik, Michał , Martins, Sheila , Mavaddat, Nahal , Mehndiratta, Man Mohan, Oliver, Angela , Öztürk, Şerefnur , Patel, Nikhil, Prakash, B, Roos, Kev, Sekaran, Lakshmanan , Shamalov, N. А. , Solomon, Alina, Suwanwela, Nijasri C., Volevach, Ekaterina , Volný, Ondřej , Wan, Joyce, Withanapathirana, Katila, Welte, Tamara, Wiebers, David O. , Zaidi, Wan Asyraf Wan , Kravchenko, Michael , Barker-Collo, Suzanne , Owolabi, Mayowa , Sachdev, Perminder S , Brainin, Michael , Thrift, Amanda , Hankey, Graeme J , Katzenellenbogen, Judith M , Nair, Balakrishnan, Kravchenko, Michael , Jalili‐Moghaddam, Shabnam , Norrving, Bo , Arroll, Bruce , Thrift, Amanda G. , Abd-Allah, Foad , Akinyemi, Rufus , Bath, Philip M. , Brayne, Carol , Child, Nicholas, Farhoudi, Mehdi , Aziz, Aznida Firzah Abdul , Gabriel, Denis , Gnedovskaya, Elena V. , Harwood, Matire L. N. , Hillis, Argye Elizabeth , Hwang, Kevin O. , Ibrahim, Norlinah Mohamed , Kalra, Nidhi, Karaszewski, Bartosz , Kivipelto, Miia , Lavados, Pablo M. , Mateen, Farrah J. , Mikulík, Robert , Oliver, Angela, Patel, Nikhil, Пирадов, М. А. , Purvis, Tara L. , Reips, Ulf‐Dietrich , Rosand, Jonathan M. , Sahathevan, Ramesh , Silva, Deidre Anne De , Singh, Vinod, Srivastava, M.V. Padma , Taylor, Denise M. , Truelsen, Thomas Clement , Venketasubramanian, Narayanaswamy , Winkler, Andrea Sylvia , Wijeratne, Tissa , Wu, Teddy Y
International Journal of Stroke | July 24, 2023 | Volume: 19 | Issue: 1 | Pages: 94-104
Background: Most strokes and cardiovascular diseases (CVDs) are potentially preventable if their risk factors are identified and well controlled. Digital platforms, such as the PreventS-MD web app (PreventS-MD) may aid health care professionals (HCPs) in assessing and managing risk factors and promoting lifestyle changes for their patients. Methods: This is a mixed-methods cross-sectional two-phase survey using a largely positivist (quantitative and qualitative) framework. During Phase 1, a prototype of PreventS-MD was tested internationally by 59 of 69 consenting HCPs of different backgrounds, age, sex, working experience, and specialties using hypothetical data. Collected comments/suggestions from the study HCPs in Phase 1 were reviewed and implemented. In Phase 2, a near-final version of PreventS-MD was developed and tested by 58 of 72 consenting HCPs using both hypothetical and real patient (n = 10) data. Qualitative semi-structured interviews with real patients (n = 10) were conducted, and 1 month adherence to the preventive recommendations was assessed by self-reporting. The four System Usability Scale (SUS) groups of scores (0–50 unacceptable; 51–68 poor; 68–80.3 good; >80.3 excellent) were used to determine usability of PreventS-MD. Findings: Ninety-nine HCPs from 27 countries (45% from low- to middle-income countries) participated in the study, and out of them, 10 HCPs were involved in the development of PreventS before the study, and therefore were not involved in the survey. Of the remaining 89 HCPs, 69 consented to the first phase of the survey, and 59 of them completed the first phase of the survey (response rate 86%), and 58 completed the second phase of the survey (response rate 84%). The SUS scores supported good usability of the prototype (mean score = 80.2; 95% CI [77.0–84.0]) and excellent usability of the final version of PreventS-MD (mean score = 81.7; 95% CI [79.1–84.3]) in the field. Scores were not affected by the age, sex, working experience, or specialty of the HCPs. One-month follow-up of the patients confirmed the high level of satisfaction/acceptability of PreventS-MD and (100%) adherence to the recommendations. Interpretation: The PreventS-MD web app has a high level of usability, feasibility, and satisfaction by HCPs and individuals at risk of stroke/CVD. Individuals at risk of stroke/CVD demonstrated a high level of confidence and motivation in following and adhering to preventive recommendations generated by PreventS-MD.
Cerebral Venous Sinus Thrombosis in Women: Subgroup Analysis of the VENOST Study
Uludüz, Derya , Şahin, Şevki , Duman, Taşkın , Öztürk, Şerefnur , Yayla, Vildan , Afşar, Nazire , Üzüner, Nevzat , Midi, İpek , Çınar, Nilgün , Sungur, Mehmet Alı , Domaç, Füsun Mayda , İnce, Birsen , Göksan, Baki , Mısırlı, Cemile Handan , Bakar, Mustafa , Çolakoğlu, Sena, Karahan, Ali Yavuz , Göksu, Eylem Özaydın , Özdağ, Fatih , Şenol, Mehmet Güney , Yürekli, Vedat Ali, Aluçlu, Ufuk, Demir, Serkan , Küçükoğlu, Hayriye , Oruç, Serdar, Yeşilot, Nilüfer , Kusbeci, Ozge Yimaz, Tokuç, Firdevs Ezgi Uçan , Tascilar, Fatma Nida, Gökçe, Mustafa , Çağlayan, Hale Zeynep Batur , Tüfekçi, Ahmet , Yalın, Osman Özgür , Utku, Uygar , Genç, Hamit , Çabalar, Murat , Milanlıoğlu, Aysel , Zeydan, Burcu , Baybaş, Sevim , Kablan, Yüksel , Göksel, Başak Karakurum , Açıkgöz, Mustafa , Kurucu, Hatice , Demirci, Seden , Güneş, Taşkın , Karahan, Ali Yavuz , Nazliel, Bijen , Zeydan, Burcu , Genç, Hamit , Uludüz, Derya , Kozak, Hasan Hüseyin , Aluçlu, Mehmet Ufuk , Küsbeci, Özge Yılmaz , Bektaş, Hesna , Tascilar, Fatma Nida, Aytaç, Emrah , Örken, Dilek Neci̇oğlu , Yılmaz, Arda Şakir , Ekmekci, Hakan
Stroke Research and Treatment | September 1, 2020 | Volume: 2020 | Issue: No issue available | Pages: 1-8
Background. Early diagnosis of cerebral venous sinus thrombosis (CVST) associated with reproductive health-related risk factors (RHRF) including pregnancy, puerperium, and oral contraceptive (OC) use can prevent severe neurological sequelae; thus, the symptoms must be documented in detail for each group. Methods. Out of 1144 patients with CVST, a total of 777 women were enrolled from a multicenter for the study of cerebral venous sinus thrombosis (VENOST). Demographic, biochemical, clinical, and radiological aspects were compared for 324 cases with RHRF and 453 cases without RHRF. Results. The mean age of the RHRF (-) group (43.2 ± 13 years) was significantly higher than of the RHRF (+) group (34±9 years). A previous history of deep venous thrombosis (3%), isolated cavernous sinus involvement (1%), cranial neuropathy (13%), comorbid malignancy (7%), and its disability scores after 12 months (9%) were significantly higher in the RHRF (-) group. The RHRF (+) group consisted of 44% cases of puerperium, 33% cases of OC users and 23% of pregnant women. The mean age was found to be higher in OC users (38±9 years). A previous history of deep venous thrombosis was slightly higher in the pregnancy subgroup (4%). Epileptic seizures were more common in the puerperium group (44%). Conclusion. The results of our study indicate that the risk of CSVT increases parallel to age, OC use, and puerperium period. In addition, when considering the frequency of findings and symptoms, epileptic seizures in the puerperium subgroup of the RHRF (+) group and malignancies in the RHRF (-) group may accompany the CSVT. In daily practice, predicting these risks for the CSVT and early recognition of the symptoms will provide significant benefits to patients.