DeCara, Jeanne
Mayo Clinic
University of Chicago School of Medicine, IL (J.D.C.).
Citations 1
Global Cardio Oncology Registry (G-COR): Registry Design, Primary Objectives, and Future Perspectives of a Multicenter Global Initiative
Teske, Arco J. , Moudgil, Rohit , López‐Fernández, Teresa , Barac, Ana , Brown, Sherry, Deswal, Anita , Neilan, Tomas G. , Ganatra, Sarju , Qadir, Husam Abdel, Menon, Venu , Sverdlov, Aaron L. , Cheng, Richard K. , Makhoul, Silvia , Ghosh, Arjun K. , Szmit, Sebastian , Addison, Daniel , Zhang, Lili , Herrmann, Joerg , Chong, Jun Hua , Agarwala, Vivek , Iakobishvili, Zaza , Guerrero, Patricia A., Leja, Monika, Guha, Avirup , Okwuosa, Tochukwu, Silva, Carolina Carvalho, DeCara, Jeanne M. , Bauer, Brenton , Lenneman, Carrie , Sadler, Diego , Zaha, Vlad G , Addison, Daniel , Agarwala, Vivek , Iakobishvili, Zaza , Yang, Eric , Akhter, Nausheen , Guha, Avirup , Okwuosa, Tochukwu M , Collier, Patrick , DeCara, Jeanne , Bauer, Brenton , Sadler, Diego , Deswal, Anita M , Barac, Ana , López-Fernández, Teresa , Sverdlov, Aaron L , Cheng, Richard , Brown, Sherry‐Ann , Collier, Patrick
Circulation: Cardiovascular Quality and Outcomes | September 13, 2023 | Volume: 16 | Issue: 10 | Pages: No page available
10.1161/circoutcomes.123.009905
BACKGROUND: Global collaboration in cardio-oncology is needed to understand the prevalence of cancer therapy-related cardiovascular toxicity in different risk groups, practice settings, and geographic locations. There are limited data on the socioeconomic and racial/ethnic disparities that may impact access to care and outcomes. To address these gaps, we established the Global Cardio-Oncology Registry, a multinational, multicenter prospective registry. METHODS: We assembled cardiologists and oncologists from academic and community settings to collaborate in the first Global Cardio-Oncology Registry. Subsequently, a survey for site resources, demographics, and intention to participate was conducted. We designed an online data platform to facilitate this global initiative. RESULTS: A total of 119 sites responded to an online questionnaire on their practices and main goals of the registry: 49 US sites from 23 states and 70 international sites from 5 continents indicated a willingness to participate in the Global Cardio-Oncology Registry. Sites were more commonly led by cardiologists (85/119; 72%) and were more often university/teaching (81/119; 68%) than community based (38/119; 32%). The average number of cardio-oncology patients treated per month was 80 per site. The top 3 Global Cardio-Oncology Registry priorities in cardio-oncology care were breast cancer, hematologic malignancies, and patients treated with immune checkpoint inhibitors. Executive and scientific committees and specific committees were established. A pilot phase for breast cancer using Research Electronic Data Capture Cloud platform recently started patient enrollment. CONCLUSIONS: We present the structure for a global collaboration. Information derived from the Global Cardio-Oncology Registry will help understand the risk factors impacting cancer therapy-related cardiovascular toxicity in different geographic locations and therefore contribute to reduce access gaps in cardio-oncology care. Risk calculators will be prospectively derived and validated.