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Wieland, Jana

Mayo Clinic

Mayo Clinic

Citations 4

Healthcare Providers’ Experiences with Hiccups in Patients with Cancer: Report of a United States National Survey
Wieland, Jana, Martin, Nichole , Jatoi, Aminah

American Journal of Hospice and Palliative Medicine® | September 29, 2022 | Volume: 40 | Issue: 8 | Pages: 872-880

10.1177/10499091221130042 Get It

Hiccups occur in 15-40% of cancer patients, but previous research has not sought the perspectives of cancer healthcare providers. The objective of this research is to report on United States cancer healthcare providers’ awareness of their patients’ hiccups and these healthcare providers' perceived need for further palliation options. A survey was developed and then distributed throughout the United States via email to cancer healthcare providers; results are reported descriptively. Six hundred eighty-four cancer healthcare providers completed 2 eligibility screening questions which required them to have cared for an adequate number of patients (> 10 in the past 6 months) with “clinically significant” hiccups (defined as hiccups that persisted for >48 hours or occurred from cancer or from cancer care). Of 113 eligible healthcare providers, 90 completed the survey. Healthcare providers described hiccups as associated with stress/anxiety, fatigue, sleep problems, and decreased work/school productivity. In 49% of patients, healthcare providers initially prescribed medications (commonly chlorpromazine or baclofen); 18% expressed dissatisfaction with current palliation. Proffered comments included, “When current therapies do not work, it can be very demoralizing to our patients; ” and “…my biggest complaint is that current treatments also come with their own side effects which can be quite severe.” Discordance appears to exist between the percentage of cancer patients with hiccups and the percentage of cancer healthcare providers with awareness of their patients’ hiccups. Nonetheless, healthcare providers described notable hiccup-associated symptoms in their patients and a need for more palliative options.
Succinct Cancer Clinical Trial Consent Forms in Rural Patients With Cancer: A Secondary Analysis of a Randomized, Double-Blinded study
Wieland, Jana, Satele, Daniel , Almodallal, Yahya , Novotny, Paul J. , Pritzl, Stephanie L., Mandrekar, Sumithra J. , Jatoi, Aminah , Novotny, Paul

Journal of Patient Experience | June 22, 2022 | Volume: 9 | Issue: No issue available | Pages: No page available

10.1177/23743735221107242 Get It

Rural patients are often underrepresented in cancer clinical trials. This is a secondary analysis of a study that tested short (2000 word) versus long (6000 word) consent forms with a focus on rurality. Among 240 patients, 89 (37%) were rural. Seventy-one (80%) rural and 117 (77%) nonrural patients signed a consent form of any length ( P = .68). Forty-one of 47 (87%) rural patients signed a short consent form; in contrast, 30 of 42 (71%) signed a long form. These trends suggest rural patients are more likely to sign short consent forms. Further study is indicated.
In Their Own Words, “Waiting Sucks:” A Qualitative Study of Medical Testing-Related Anxiety in Patients with Cancer
Mannion, Samantha , Martin, Nichole , O’Connor, Jennifer M. , Wieland, Jana, Jatoi, Aminah , Martin, Nichole A, O'Connor, Jennifer

American Journal of Hospice and Palliative Medicine® | May 28, 2022 | Volume: 40 | Issue: 5 | Pages: 468-474

10.1177/10499091221105502 Get It

Objective This qualitative study sought to learn from patients with cancer -- in their own words -- about anxiety associated with medical testing. Methods Patients with cancer or a history of cancer were recruited from an oncology clinic. After oral consent, each was interviewed in person. A semi-structured interview guide was used to help focus the interviews. Interviews were then recorded, transcribed, and analyzed with rigorous qualitative methods. Results Twenty patients are the focus of this report, which highlights 2 main themes from the data. The first is that anxiety related to medical testing is a real entity. Although not all patients experienced it, those who did described it as such (“I was a little apprehensive.” “It’s the anticipation.” “I don’t think it bothers me until I get near the time for testing.”). The second theme focused on coping. Patients offered insight on how to cope (“So I just deal with it and work.” “And don’t let myself sink into a pity pot ….” “See your scan as a tool instead of … instead of um … a death sentence, I suppose.”) Conclusion In patients with cancer, the anxiety from medical testing is real, could perhaps be mitigated by sharing coping methods from patient to patient, and merits further study.
Equity
Wieland, Jana, Jordan, Barbara L., Jatoi, Aminah , Wieland, Jana

Cancer | April 11, 2022 | Volume: 128 | Issue: 12 | Pages: 2240-2242

10.1002/cncr.34179 Get It

This editorial comments on an important study by Williams and colleagues. Their study provides direction for future research and for the next steps in clinical cancer care.