Citations 2
Evaluation and Management of Noncardiac Comorbidities in Children With Congenital Heart Disease
Chowdhury, Devyani , Toms, Rune, Bindom, Sharell M., Ather, Mishaal, Jaquiss, Robert D.B. , Johnson, Jonathan N. , Brumbaugh, Jane E.
Pediatrics | November 1, 2022 | Volume: 150 | Issue: Supplement 2 | Pages: No page available
Outcomes for patients with neonatal heart disease are affected by numerous noncardiac and genetic factors. These can include neonatal concerns, such as prematurity and low birth weight, and congenital anomalies, such as airway, pulmonary, gastrointestinal, and genitourinary anomalies, and genetic syndromes. This section will serve as a summary of these issues and how they may affect the evaluation and management of a neonate with heart disease. These noncardiac factors are heavily influenced by conditions common to neonatologists, making a strong argument for multidisciplinary care with neonatologists, cardiologists, surgeons, anesthesiologists, and cardiovascular intensivists. Through this section and this project, we aim to facilitate a comprehensive approach to the care of neonates with congenital heart disease.
Health Care Policy and Congenital Heart Disease: 2020 Focus on Our 2030 Future
Chowdhury, Devyani , Johnson, Jonathan N. , Baker‐Smith, Carissa M. , Jaquiss, Robert, Mahendran, Arjun , Curren, Valerie , Bhat, Aarti , Marshall, Audrey C. , Fuller, Stephanie , Marino, Bradley S. , Fink, Christina M. , Ather, Mishaal, Torentinos, Natalie, Kranz, Olivia, Thorne, Vivian, Berger, Stuart, Shaffer, Kenneth M. , Mahendran, Arjun K , Fink, Christina M , Lopez, Keila N , Baker-Smith, Carissa M , Jaquiss, Robert D.B. , Patel, Angira , Lopez, Keila N. , Frank, Lowell H. , Davies, Ryan R. , Snyder, Christopher, Saidi, Arwa S.
Journal of the American Heart Association | October 8, 2021 | Volume: 10 | Issue: 20 | Pages: No page available
Abstract The congenital heart care community faces a myriad of public health issues that act as barriers toward optimum patient outcomes. In this article, we attempt to define advocacy and policy initiatives meant to spotlight and potentially address these challenges. Issues are organized into the following 3 key facets of our community: patient population, health care delivery, and workforce. We discuss the social determinants of health and health care disparities that affect patients in the community that require the attention of policy makers. Furthermore, we highlight the many needs of the growing adults with congenital heart disease and those with comorbidities, highlighting concerns regarding the inequities in access to cardiac care and the need for multidisciplinary care. We also recognize the problems of transparency in outcomes reporting and the promising application of telehealth. Finally, we highlight the training of providers, measures of productivity, diversity in the workforce, and the importance of patient–family centered organizations in advocating for patients. Although all of these issues remain relevant to many subspecialties in medicine, this article attempts to illustrate the unique needs of this population and highlight ways in which to work together to address important opportunities for change in the cardiac care community and beyond. This article provides a framework for policy and advocacy efforts for the next decade.