Citations 3
Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality
Venkataraman, Vinayak , Martin‐Giacalone, Bailey A. , Drake, Bettina F. , Salmi, Liz , Claus, Elizabeth B. , Bridges, John F. P. , Lenz, Heinz‐Josef , Willman, Cheryl L. , Diehl, Diane M. , Janeway, Katherine A. , Mack, Jennifer W. , Bridges, John Fp , Lenz, Heinz-Josef , Willman, Cheryl , Diehl, Diane , Janeway, Katherine A , George, Suzanne , Schuster, Anne Lr , George, Suzanne
Journal of Clinical Oncology | August 2, 2024 | Volume: 42 | Issue: 34 | Pages: 4018-4022
Citizen science to further precision medicine: from vision to implementation
Petersen, Carolyn , Austin, Robin , Campos, Hugo , Chung, Arlene E. , Hekler, Eric B. , Hsueh, Pei-Yun S, Pho, Anthony T. , Salmi, Liz , Austin, Robin R , Petersen, Carolyn , Backonja, Uba , Kim, Katherine K. , Solomonides, Anthony , Valdez, Rupa S.
JAMIA Open | December 3, 2019 | Volume: 3 | Issue: 1 | Pages: 2-8
AbstractThe active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities
Salmi, Liz , Freeman‐Daily, Janet , Utengen, Audun , Dizon, Don S. , Blotner, Charlie , Cooke, David T. , Sparacio, Dee, Staley, Alicia C. , Young, Colleen , Young, Colleen D , Utengen, Audun , Katz, Matthew S. , Anderson, Patricia F , Thompson, Michael A. , Fisch, Michael , Attai, Deanna J.
JCO Clinical Cancer Informatics | June 28, 2019 | Volume: No volume available | Issue: 3 | Pages: 1-10
Twitter use has increased among patients with cancer, advocates, and oncology professionals. Hashtags, a form of metadata, can be used to share content, organize health information, and create virtual communities of interest. Cancer-specific hashtags modeled on a breast cancer community, #bcsm, led to the development of a structured set of hashtags called the cancer tag ontology. In this article, we review how these hashtags have worked with the aim of describing our experience from 2011 to 2017. We discuss useful guidelines for the development and maintenance of health-oriented communities on Twitter, including possible challenges to community sustainability and opportunities for future improvement and research.