Citations 1
Management of Adolescent–Parent Dyads’ Discordance for Willingness to Participate in a Reproductive Health Clinical Trial
Francis, Jenny , Fraiz, Lauren Dapena, Roche, Ariel M. de, Catallozzi, Marina , Breitkopf, Carmen Radecki , Rosenthal, Susan L. , Francis, Jenny K R , Radecki Breitkopf, Carmen, Roche, Ariel M. de
Journal of Empirical Research on Human Research Ethics | December 11, 2017 | Volume: 13 | Issue: 1 | Pages: 42-49
The objective of this study is to understand the resolution of discordance between adolescent–parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation ( n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.