Citations 1
Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in the All of Us Research Program With the American Community Survey
Randal, Fornessa T., Lozano, Paula , Qi, Siya, Maene, Chieko, Shah, Sameep , Mo, Yicklun, Ratsimbazafy, Francis, Boerwinkle, Eric , Cicek, Mine , Loperena, Roxana , Mayo, Kelsey , Mockrin, Stephen, Ohno‐Machado, Lucila , Schully, Sheri D. , Ramirez, Andrea H. , Aschebrook‐Kilfoy, Briseis , Ahsan, Habibul , Lam, Helen , Kim, Karen E., Clark, Cheryl R. , Cohn, Elizabeth, Gebo, Kelly A , Kim, Karen E.
Journal of Transcultural Nursing | November 18, 2022 | Volume: 34 | Issue: 1 | Pages: 59-67
Background: Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us . The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey. Method: Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate. Results: Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy. Conclusion: This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.