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Espinoza, Dairlin

Mayo Clinic

Mayo Clinic

Citations 1

Spanish translation and cultural adaptation of the memory support system: A pilot study
Santos, Octavio A. , Espinoza, Dairlin, Pedraza, Otto , Chandler, Melanie

Alzheimer's & Dementia | December 7, 2020 | Volume: 16 | Issue: S7 | Pages: No page available

10.1002/alz.042120 Get It

AbstractBackgroundSubjective cognitive decline (SCD) affects 1 in 9 Hispanics aged ≥45 in the U.S., including 1 in 3 who report that SCD interferes with instrumental activities of daily living (IADLs) and 1 in 2 who give up IADLs or need help performing household tasks. A curriculum and calendar/note‐taking system [Memory Support System (MSS)] has proven effective to sustain independence in IADLs in patients with mild cognitive impairment, and protect mood among program partners compared to controls. Until recently, the MSS had only been utilized among English‐speaking, predominately Caucasian, samples.MethodThis study investigated the use of a translated and culturally‐adapted MSS in 20 Spanish‐speaking participants with SCD [80% female, age M = 66.8 (SD = 10.3), education M = 14.8 (SD = 3.6)] and their program partners. A within‐subject multiple baseline design in a 10‐session, 2 to 6‐week MSS training schedule was utilized. Outcome measures included treatment adherence and self‐ and informant‐report questionnaires of IADLs, anxiety, depression, self‐efficacy, caregiver burden, and quality of life.ResultMSS training significantly improved adherence to the MSS calendar by treatment completion (d = ‐3.75). Participants with SCD also showed significant improvement in overall functional status (d = 0.72), and in daily activities requiring organizational skills (d = 0.66). Symptoms of depression (d = 0.99) and anxiety (d = 0.84) also improved by treatment end, and program partners reported significant improvement in their own anxiety (d = 0.84). There was a significant association between MSS adherence and anxiety in participants with SCD (r = ‐.51).ConclusionOverall, preliminary findings suggest that with appropriate training, Spanish‐speaking participants with SCD can and will use a memory notebook system to help compensate in daily life for their SCD and decrease emotional distress. Future research should investigate the Spanish MSS efficacy over time in a randomized controlled trial.